The sources listed alphabetically below were most important in Dr. Campbell's research. Some sources may be listed in the ADDITIONAL RESOURCES section as well.
Berg, Insoo Kim, and Dolan, Yvonne. Tales of Solutions: A Collection of Hope-Inspiring Stories. New York, N.Y.: W.W. Norton & Co. 2001.
Bridges, William, Ph.D. Transitions: Making Sense of Life's Changes. Reading, Mass.: Addison-Wesley. 1980.
Cameron, Lindsley. The Music of Light: The Extraordinary Story of Hikari and Kenzaburo Oe. New York, N.Y.: The Free Press. 1998.
Chamaz, Kathy. Good Days, Bad Days: The Self in Chronic Illness and Time. New Brunswick, New Jersey: Rutgers University Press. 1991.
Cousins, Norman. Anatomy of an Illness as Perceived by the Patient: Reflections on Healing and Regeneration. New York, N.Y.: W.W. Norton & Co. Inc. 1979. N.Y.: Bantam Books. 1981.
Donohue, Paul, Ph.D., and Siegel, Mary E., Ph.D. Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Disease. New York N.Y.: W.W. Norton & Co. 1992.
Dubovsky, Steven L., M.D. Mind - Body Deceptions: The Psychosomatics of Everyday Life. New York, N.Y.: W.W. Norton & Co. 1997.
Falvo, Donna R., R.N., Ph.D., CRC. Medical and Psychosocial Aspects of Chronic Illness and Disability. Gaithersburg, Maryland: An Aspen Publication, Aspen Publishers, Inc. 1999.
Green, Stephen A., M.D. Mind & Body: The Psychology of Physical Illness. Washington, D.C.: American Psychiatric Press, Inc. 1985.
Heymann, Jody, M.D. Equal Partners: A Physician's Call for a New Spirit of Medicine. Boston, Mass.: Little, Brown & Co. 1995.
Hymovich, Debra P., R.N., Ph.D., FAAN., and Hagopian, Gloria A., R.N., Ed.D. Chronic Illness in Children and Adults: A Psychosocial Approach. Philadelphia, Pa.: W.B.Saunders Co. 1992.
Kleinman, Authur, M.D. The Illness Narratives: Suffering, Healing, and the Human Condition. New York, N.Y.: Basic Books Publishers, Inc. 1988.
LeBow, Bob, M.D., MPH. Health Care Meltdown: Confronting the Myths and Fixing Our Failing System. Boise, Idaho: JRI Press. (Self-published). 2002.
Lewis, Kathleen. Celebrate Life: New Attitudes for Living with Chronic Illness. Atlanta, Georgia: Arthritis Foundation. 1999.
Livneh, Hanoch, Ph.D., and Antonek, Richard F., Ed.D. Psychosocial Adaptations To Chronic Illness and Disability. Gaithersburg, Md.: Aspen Publishers, Inc. 1997.
Lown, Bernard, M.D. The Lost Art of Healing. Boston, Mass.: Houghton Mifflin Company. 1996.
Lubkin, Irene Morof, N.N., Ph.D., MS., CGNP., and Larsen, Pamela D., R.N., Ph.D., cRRN. Chronic Illness: Impact and Interventions. Sudbury, Mass.: Jones Bartlett Publishers. 2002.
Lundberg, George D., M.D. with Stacy, James. Severed Trust: Why American Medicine Hasn't Been Fixed. New York, N.Y.: Basic Books. 2000.
Miller, Judith Fitzgerald, R.N., Ph.D., FAAN. Coping With Chronic Illness: Overcoming Powerlessness. Pennsylvania, Pa.: F.A.Davis Company. 2000.
Newborn, Barbara. Return to Ithaca: A Woman's Triumph Over the Disabilities of a Severe Stroke. Rockport, Mass.: Element. 1997.
Pollin, Irene, MSW., with Golant, Susan K., MA. Taking Charge: Overcoming the Challenges of Long-Term Illness. New York, N.Y.: Times Books. Random House. 1994.
Price, Reynolds. A Whole New Life: An Illness and a Healing. New York, N.Y.: Athenium. 1994.
Reeve, Christopher. Nothing Is Impossible: Reflections on a New Life. New York, N.Y.: Random House. 2002.
Reeve, Christopher. Still Me. New York, N.Y.: Random House. 1998.
Remen, Rachel Naomi, M.D. Kitchen Table Wisdom: Stories that Heal. New York, N.Y.: Riverhead Books. 1996.
Remen, Rachel Naomi, M.D. My Grandfather's Blessings: Stories of Strength, Refuge, and Belonging. New York, N.Y.: Riverhead Books. 2000.
Sacks, Oliver. A Leg to Stand On. Summit Books. 1984. New York, N.Y.: A TouchStone Book. Simon & Schuster. 1993. Afterward. 1993.
Sacks, Oliver. Migraine: Revised and Expanded. New York, N.Y.: Vintage Books. A division of Random House, Inc. 1992.
Sacks, Oliver. Seeing Voices: A Journey Into the World of the Deaf. Berkeley, Ca.: University of California Press. 1989.
Shuman, Robert. The Psychology of Chronic Illness: The Healing Work of Patients, Therapists, and Families. New York, N.Y.: BasicBooks. 1996.
Smith, Bob. Hamlet's Dresser: A Memoir. New York, N.Y.: Scribner. 2002.
Smith, Robert C. The Patient's Story: Integrated Patient-Doctor Interviewing. Forward by Engel, George L., Boston, Mass.: Little, Brown, and Co. 1996.
Sontag, Susan. Illness as Metaphor. New York, N.Y.: Farrar, Strauss, and Giroux. 1978.
Vickers, Margaret H. Work and Unseen Chronic Illness: Silent Voices. New York, N.Y.: Rutledge. Taylor & Francis Group. 2001.
ADDITIONAL RESOURCES
These books, articles, and videos are a very important because they encourage the reader to explore the experience of illness and disability from many points of view. Dr. Campbell feels that many of these resources add a depth of understanding not usually found in traditional medical books and literature. For your convenience, these resources are listed in alphabetical order, and are categorized into general types of issues discussed. Some resources are listed under more than one category.
Textbooks Relating to Managing Chronic Illnesses and Disabilities for Professionals and Patients:
Donahue, Paul J., Ph.D. and Siegel, Mary E., Ph.D. Sick and Tired of Feeling Sick and Tired: Living with Invisible Chronic Disease. New York, N.Y.: W.W. Norton & Co. 1992, 2000.
Falvo, Donna R., R.N., Ph.D., CRC. Medical and Psychosocial Aspects of Chronic Illness and Disability. Gaithersburg, Md.: Aspen Publishers, Inc. 1999.
Funk, Sandra G., Ph.D., Torquist, Elizabeth M., MA, Leeman, Jennifer, D.PH., M.Div., Miles, Margaret S., Ph.D., R.N., and Harrell, Joanne S., Ph.D., R.N. Key Aspects of Preventing and Managing Chronic Illness. New York, N.Y.: Springer Publishing Co. 2001.
Gerteis, Margaret, Edgman-Leviton, Daley, Jennifer, and Delbanco, Thomas L., Editors. Through the Patient's Eyes: Understanding and Promoting Patient-Centered Care. San Francisco, Ca.: Josey-Bass Publishers. 1993.
Green, Stephen A., M.D. Mind & Body: The Psychology of Physical Illness. Washington, D.C.: American Psychiatric Press, Inc. 1985. (See REFERENCES section).
Hymovich and Hagopian, Chronic Illness in Children and Adults: A Psychosocial Approach. (See REFERENCES section for complete citation).
Kleinman. The Illness Narratives. (See REFERENCES section).
Livneh and Antonek. Psychosocial Adaptations to Chronic Illness and Disability. (See REFERENCES section).
Lubkin and Larsen. Chronic Illness: Impact and Interventions. (see REFERENCES section).
Shuman. The Psychology of Chronic Illness: The Healing Work of Patients, Therapists, and Families. (see REFERENCES section).
Vickers. Work and Unseen Chronic Illness: Silent Voices. (see REFERENCES section).
Mind /Body Interaction in Health, Illness and Healing:
Berg and Dolan. Tales of Solutions: A Collection of Hope-Inspiring Stories. (see REFERENCES section).
Bridges, William, Ph.D., Transitions: Making Sense of Life's Changes. Reading, Mass.: Addison-Wesley Publishing Co. 1980.
Cousins, Norman. Anatomy of an Illness. (see REFERENCES section).
Cousins, Norman. Head First: The Biology of Hope and the Healing Power of the Human Spirit. New York, N.Y.: Penguin Books. 1990.
Cousins, Norman. The Healing Heart: Antidotes to Panic and Helplessness. New York, N.Y.: W.W. Norton & Co. 1983.
DeBecker, Gavin. The Gift of Fear: And Other Survival Signals that protect Us from Violence. Boston, Mass.: Random House, Inc. 1997.
Dossey, Larry, M.D. Reinventing Medicine: Beyond Mind-Body to a New Era of Healing. San Francisco, Ca.: HarperCollins Publishers. 1999.
Dubovsky. Mind - Body Deceptions: The Psychosomatics of Everyday Life. (see REFERENCES section).
Eisenberg, David, M.D. with Lee, Thomas. Encounters with Qi: Exploring Chinese Medicine. New York, N.Y.: W.W. Norton & Co. 1985.
Green. Mind & Body: The Psychology of Physical Illness. (see REFERENCES section).
Gutkind, Lee, editor. Healing: 20 Prominent Authors Write about Inspirational Moments of Achieving Health and Gaining Insight. New York, N.Y.: Penguin/Putnam, Inc. 2001.
Janiger, Oscar, M.D. and Goldberg, Philip. A Different Kind of Healing: Doctors Speak Candidly about their Successes with Alternative Medicine. New York, N.Y.: G.P. Putnam's Sons. 1993.
Kubler-Ross, Elizabeth, M.D. The Wheel of Life: A Memoir of Living and Dying. New York, N.Y.: Scribner. 1997.
Lappe`, Marc, Ph.D. The Tao of Immunology: A Revolutionary New Understanding of Our Body's Defenses. New York, N.Y.: Plenum Trade. 1997.
Mehl-Madrona, Lewis, M.D. Coyote Medicine. New York, N.Y.: Scribner. 1997.
Milburn, Michael P., Ph.D. The Future of Healing: Exploring the Parallels of Eastern and Western Medicine. Freedom, California: The Crossing Press. 2001.
Moyers, Bill. Healing and The Mind: 5 videos-Vol. 1: Mystery of Chi; Vol. 2: The Mind-Body Connection; Vol. 3: Healing From Within; Vol. 4: The Art of Healing; Vol.5: Wounded Healers. David Grubin Productions, Inc. and Public Affairs Television Inc. 1993.
Moyers, Bill. On Our Own Terms: Moyers on Dying. Program one: Living with Dying; Program two: A Different Kind of Care; Program three: A Death of One's Own; Program four: A Time to Change. 4 videos. Films For the Humanities and Sciences. 2000.
Northrup, Christine, M.D. Women's Bodies, Women's Wisdom: Creating Physical and Emotional Health and Healing. New York, N.Y.: Bantam Books. 1998.
Perrone, Bobette, Stockel, H. Henrietta, and Krueger, Victoria. Medicine Women, Curanderos, and Women Doctors. Norman, Oklahoma: University of Oklahoma Press. 1989.
Siegel, Bernie S., M.D. Peace, Love, and Healing: Bodymind Communication and the Path to Self-Healing: An Exploration. New York, N.Y.: Harper & Row. 1989.
Sternberg, Esther M. and Gold, Phillip W. The Mind-Body Interaction in Disease. From The Hidden Mind: Special Edition Scientific American, Vol. 12, No. 1, June 2002. P. 82.
The Ailing U.S. Health Care System, and the Art and the Science of the Practice of Medicine:
Alvord, Lori Arviso, M.D. and Van Pelt, Elizabeth Cohen. The Scalpel and the Silver Bear: The First Navajo Woman Surgeon Combines Western and Traditional Healing. New York, N.Y.: Bantam Books. 1999.
Cassell, Eric J., M.D. Doctoring: The Nature of Primary Care Medicine. New York, N.Y.: Oxford University Press. A Copublication with the Milbank Memorial Fund. 1997.
Funk, Sandra G., Ph.D., Torquist, Elizabeth M., MA., Leeman, Jennifer, Dr.PH., M.Div., Miles, Margaret S., Ph.D., R.N., and Harrell, Joanne S., Ph.D., R.N. Key Aspects of Preventing and Managing Chronic Illness. New York, N.Y.: Springer Publishing Co. 2001.
Groopman, Jerome, M.D. Second Opinions. New York, N.Y.: Viking. 2000.
Halpern, Jodi, M.D., Ph.D. From Detached Concern to Empathy: Humanizing Medical Practice. New York, N.Y.: Oxford University Press. 2001.
Heymann, Jody, M.D. Equal Partners: A Physician's Call for a New Spirit of Medicine. (see REFERENCES section).
Hunter, Kathryn Montgomery. Doctor's Stories: The Narrative Structure of Medical Knowledge. Princeton, NJ: Princeton University Press. 1991.
Kaufman, Sharon R. The Healer's Tale: Transforming Medicine and Culture. Madison, Wisconsin: The University of Wisconsin Press. 1993.
LeBow, Bob, M.D., MPH. Health Care Meltdown: Confronting the Myths and Fixing Our Failing System. (see REFERENCES section).
Lown, Bernard, M.D. The Lost Art of Healing. (see REFERENCES section).
Lundberg, George D., M.D. with Stacy, James. Severed Trust: Why American Medicine Hasn't Been Fixed. (see REFERENCES section).
Nuland, Sherwin B., M.D. The Mysteries Within: A Surgeon Reflects on Medical Myths. New York, N.Y.: Simon & Schuster. 2000.
Platt, Frederic W., M.D. Conversation Failure: Case Studies in Doctor-Patient Communication. Tacoma, WA.: Life Sciences Press. 1992.
Porter, Roy. Greatest Benefit to Mankind: The Medical History of Humanity. New York, N.Y., and London, England: W.W. Norton & Co. 1997. American edition 1998.
Smith, Robert C., M.D. The Patient's Story: Integrated Patient-Doctor Interviewing. Forward by Engel, George L., M.D. Boston, Mass.: Little, Brown & Co. 1996.
Starr, Paul. The Social Transformation of American Medicine: The Rise of a Sovereign Profession and the Making of a Vast Industry. New York, N.Y.: Basic Books, Inc. Publishers. 1982.
Staton, Jana, Shuy, Roger and Byock, Ira. A Few Months to Live: Different Paths to Life's End. Washington D.C.: Georgetown University Press. 2001.
About Surviving the Experience of Chronic Illness, Disabilities, and other Life Traumas and Disasters-Grieving and Healing:
Bolen, Jean Shinoda, M.D. Close to the Bone: Life-Threatening Illness and the Search for Meaning. New York, N.Y.: Scribner. 1996.
Breslin, Rosemary. Not Exactly What I Had in Mind: An Incurable Love Story. New York, N.Y.: Villard Books/Random House. 1997.
Cameron, Lindsley. The Music of Light: The Extraordinary Story of Hikari and Kenzaburo Oe. (see REFERENCES section).
Carrell, Jennifer Lee. The Speckled Monster: A Historical Tale of Battling Smallpox. New York, New York.: Dutton/Penguin. 2003.
Carter, Betsy. Nothing to Fall Back On: The Life and Times of a Perpetual Optimist. New York, N.Y.: Hyperion. 2002.
Cassell, Eric J. The Nature of Suffering and the Goals of Medicine. New York, N.Y.: Oxford University Press. 1991.
Charmaz, Kathy. Good Days, Bad Days: The Self in Chronic illness and Time. New Brunswick, NJ.: Rutgers University Press. 1991.
Cousins, Norman. Anatomy of an Illness. (see previous citations).
Cousins, Norman. Head First. (see previous citations).
Cousins, Norman. The Healing Heart. (see previous citations).
DeBecker, Gavin. The Gift of Fear. (see previous citation).
Deits, Bob. Life After Loss: A Personal Guide Dealing With Death, Divorce, Job Change, and Relocation. Tucson, Arizona: Fisher Books. 1988.
Donahue and Siegel. Sick and Tired of Feeling Sick and Tired. (see previous citation).
Duff, Kat. The Alchemy of Illness. New York, N.Y.: Bell Tower. 1993.
Fox, Michael J. Lucky Man: A Memoir. New York, N.Y.: Hyperion. 2002.
Frank, Anne. The Diary of a Young Girl: The Definitive Edition. Edited by Otto Frank and Miriam Pressler. Translated by Susan Massotty. New York, N.Y.: Bantam/Random House. 1997.
Frank, Arthur. At the Will of the Body: Reflections on Illness. Boston, Mass.: Houghton Mifflin Co. 1991.
Frank, Arthur. The Wounded Storyteller: Body, Illness, and Ethics. Chicago, Ill.: The University of Chicago Press. 1995.
Frankl, Viktor E. Man's Search for Meaning: An Introduction to Logotherapy. Boston, Mass.: Beacon Press. 1992.
Griffin, Susan. What Her Body Thought: A Journey Into the Shadows. San Francisco, Ca: Harper. 1999.
Jamison, Kay Redfield. An Unquiet Mind: A Memoir of Moods and Madness. New York, N.Y.: Vintage Books/Random House. 1995.
Jeffers, Susan, Ph.D. Embracing Uncertainty: Breakthrough Methods for Achieving Peace of Mind When Facing the Unknown. New York, New York.: St. Martin's Press. 2003.
Jennings, Kate. Moral Hazard: A Novel. New York, N.Y.: Fourth Estate/HarperCollins. 2002.
Kapur, Navinder. Injured brains of Medical Minds: Views from Within. Edited and compiled by Navinder Kapur. New York, New York.: Oxford University Press. 1997.
Kaufman, Miriam, M.D. Easy for You to Say: Q & A's for Teens Living with Chronic Illness or Disability. Toronto, Canada: Key Porter Books. 1995.
Keller, Helen. The Story of My Life: The Restored Classic 1903-2003. Edited by Roger Shattuck with Dorothy Hermann; Supplementary Accounts by Anne Sullivan, her Teacher, and John A. Macy. New York, N.Y.: W. W. Norton & Co. 2003.
Kerrey, Bob. When I Was a Young Man: A Memoir. New York, N.Y.: A James H. Silberman Book/Harcourt, Inc. 2002.
Kleinman, Arthur, M.D. The Illness Narratives. (see previous citation REFERENCES).
Kubler-Ross. The Wheel of Life. (see previous citation).
Lear, Martha Weinman. Heart Sounds: The Story of a Love and Loss. New York, New York.: Simon & Schuster. 1980.
Lerner, Max. Wrestling With the Angel: A Memoir of My Triumph Over Illness. New York, N.Y.: W.W. Norton & Co. 1990.
Lewis, C.S. A Grief Observed. Forward 1994. San Francisco, Ca.: Harper. 1961.
Lewis, Kathleen. Celebrate Life: New Attitudes for Living with Chronic Illness. Atlanta, Georgia.: Arthritis Foundation. 1999.
MacPherson, Myra. She Came to Live Out Loud: An Inspiring Family Journey Through Illness, Loss, and Grief. New York, N.Y.: A Lisa Drew Book/Scribner. 1999.
Mardell, Harvey, M.D. and Spiro, Howard, M.D., editors. When Doctors Get Sick. New York, N.Y.: Plenum Medical Book. 1987.
Miller, Judith Fitzgerald, R.N., Ph.D., FAAN. Coping With Chronic Illness: Overcoming Powerlessness. Philadelphia, Pa.: F.A. Davis Co. 2000.
Mullan, Fitzhugh, M.D. Vital Signs: A Young Doctor's Struggle with Cancer. New York, N.Y.: Farrar, Straus, Giroux. 1982.
Neumayr, Anton. Music & Medicine: Haydn, Mozart, Beethoven, Schubert. Translated by Clarke, Bruce Cooper. Bloomington, Ill.: Medi-Ed Press. 1994.
Newborn. Return to Ithaca. (see REFERENCES section).
Pensack, Robert, M.D. and Williams, Dwight. Raising Lazarus: A Memoir. New York, N.Y.: G.P. Putnam's Sons. 1994.
Pollin, Irene, MSW., and Golant, Susan K., MA. Taking Charge: Overcoming the Challenges of Long-Term Illness. New York, N.Y.: Times Books/Random House. 1994.
Price, Reynolds. A Whole New Life. (see REFERENCES section).
Reeve, Christopher. Nothing is Impossible. (see REFERENCES section).
Reeve, Christopher. Still Me. (see REFERENCES section).
Register, Cheri. Living With Chronic Illness: Days of Patience and Passion. New York, N.Y.: The Free Press/MacMillan, Inc. 1987.
Remen. Kitchen Table Wisdom. (see REFERENCES section).
Remen. My Grandfather's Blessings. (see REFERENCES section).
Rosenbaum, Edward, M.D. A Taste of My Own Medicine: When the Doctor is the Patient. New York, N.Y.: Random House. 1988.
Sacks, Oliver. A Leg To Stand On. (see REFERENCES section).
Sacks, Oliver. An Anthropologist On Mars: Seven Paradoxical Tales. New York, N.Y.: Vintage/Random House, Inc. 1995.
Sacks, Oliver. Awakenings. New York, N.Y.: Harper/Perrennial. 1990.
Sacks, Oliver. Migraine. (see REFERENCES section).
Sacks, Oliver. The Island of the Colorblind; and Cycad Island. New York, N.Y.: Vintage Books/RandomHouse. 1997.
Sacks, Oliver. The Man Who Mistook His Wife for a Hat and Other Clinical Tales. New York, N.Y.: Simon & Schuster. 1998.
Sacks, Oliver. Seeing Voices: A Journey Into the World of the Deaf. Berkeley, Ca.: University of California Press. 1989.
Sacks, Oliver. Uncle Tungsten: Memories of a Chemical Boyhood. New York, N.Y.: Alfred A Knopf. 2001. Thorndike Press. 2002.
Schmookler, Andrew Bard. Living Posthumously: Confronting the Loss of Vital Powers. New York, N.Y.: Henry Holt & Co. 1997.
Shuman. The Psychology of Chronic Illness. (see REFERENCES section).
Smith. Hamlet's Dresser. (see REFERENCES section).
Sontag. Illness as Metaphor. (see REFERENCES section).
Sparks, Nicholas. The Guardian. New York, N.Y.: AOL Time Warner Co. 2003.
Sparks, Nicholas. The Notebook. New York, N.Y.: Warner Books.1996.
Sparks, Nicholas. Message in a Bottle. New York, N.Y.: Warner Books. 1998.
Staton, Shuy, and Byrock. A Few Months to Live. (see previous reference in RESOURCES section).
Terkel, Studs. Will the Circle Be Unbroken?: Reflections on Death, Rebirth, and Hunger for a Faith. New York, N.Y.: The New Press. 2001.
Thomas, Marlo, and Friends. The Right Words at the Right Time. New York, New York.: Atria Books. 2002.
West, Paul. A Stroke of Genius: Illness and Self-Discovery. New York, N.Y.: Viking/Penguin. 1995.
Zazove, Philip, M.D. When the Phone Rings, My Bed Shakes: Memoirs of a Deaf Doctor. Washington, D.C.: Gallaudet University Press. 1993.